Friday, March 25, 2011

I am still waiting on blogging lessons from Jessi. hahaha. I haven't seen much of her lately... she works at the school by day and Lowes (or Blowes as she calls it,lol) in the evening. She is so tired! Poor lil girl! Well, we all had to work hard in the beginning, so this is life! Not alot is new here. Jess, Levi, and I went to the circus, it was absolutely terrible. I will never go to another one! Those poor animals. Tigers pacing back & forth, over and over in tiny little cages. (I got a behing the scenes look outside.) A worker yelling at the elephant, "knock it off!" It was so sad. And they loaded those tigers in a semi, one on top of another like crates of cargo, in the dark. So I got home and googled them... apparently they can go up to 9 days in those cages without proper exercise. That just breaks my heart! And I paid money to enable this- ugh! Ok, I'll get off my soap box.


So, not alot is new here. My platelets (for clotting) have stayed too low for chemo. I also got 2 units of blood, my hgb was low and I had noooo energy. I just couldn't get up off the couch! I feel so much better now... ready to go dancing! well, maybe not dancing. hahaha. I was feeling really stressed about being 2 weeks behind with chemo, but it all happened for a reason. We are scratching the chemo with steroids and picking a whole different one! I cannot put into words how much distress I felt, insurance denied the other drug again. But I stuck to my guns and refused the chemo with steroids, saw the specialist for thymic cancer @IU, and now we are totally switching. Something in my gut said don't do it. I have ignored that little voice too many times over the past 4 years, but not this time. I really don't care if people think I'm a PIA anymore, I have to listen to my body and that 6th sense... this is my LIFE we are talking about! Ok, done with stupid cancer update.


Today Paul is off work, and I have a suprise overnight getaway planned. He doesn't know where we are going and I LOVE it! We are going to Cinci to spend time with Tim and Anne (his bestest friend). Nothing huge, but a nice little mini vacation. I'm so happy, I need outa here! I've decided I have way too much time on my hands to think, not good sometimes! So I am going to start, or should I say finish, some projects.


Have a great weekend, hug and kiss the ones you love... enjoy every minute you have been given! Peace out.

Wednesday, March 9, 2011



Me, Shanda, Emily, & Allison. (My OB girls I used to work with.Oh, the fun we used to have on night shift!) I love you guys!!!!



Jessi popping out!























Above;our anniversary night out at La Piazza
Above right; Zack, me, & Tyler when we met Laura for lunch.

Ok, so I hate computers! ugh!!! It took me 3 days to get these pictures on here, and I have accidentally deleted several...multiple times. Then last night I saw Jess on her baby blog, editing away! She was able to move stuff all around & add captions to her pictures! I am going to have to get lessons from her, because my template is horrible!!! So, there's a picture of Levi and me missing, as well as Laura and me. And I am done trying! lol.

Paul and I had an awesome anniversary! I had to do it big this year (because I'm tired of hearing about how I forgot our 1st anniversary, lol). So, I arranged for a massage at our house for him one night, the next we went out to our favorite restaurant. I also arranged for 3 future dates; next Thurs we are supposed to go to Wildwood Inn Suites in Florence KY, and fri night is a surprise 2nd over-nighter. Then I got gift certificates for Ye Old Tavern in Yellow Springs- so we can spend a day hiking at Clifton Gorge & then go to the tavern to eat. Ummm, I can't remember the 3rd date right now, but I will! Lol, typical me... I also have CRS! Can't remember shit! haha. Oh, and I bought Paul a new leather recliner for his man-room and made him a photo album via shutterfly with every picture ever taken of the 2 of us, it tells our love story.I loooove it, it is beautiful!(All thanks to Tommy's Sarah for helping me!!! I owe you BIG) I did good, heeheehee.
Cancer update; the chemo I got has made my histo levels rise again (because of the steroids). And I couldn't get chemo this week because my platelets are too low. So, my doctor wanted to switch me to a different drug (the same one, but it's made differently so there's no need for steroids) but insurance denied it initially, and it takes 30 days to appeal them. And then if they deny it again we can request the drug company to donate it, which basically gives them a free clinical trial, but again, we are talking another 30 days. So the whole situation just sucks because I have to just continue with the chemo w/steroids and if I get sick with full blown histo, chemo is out all together, to treat the histo again. And we all know that no chemo= cancer growing like crazy. Not good! So I have been very sad and overwhelmed, knowing there's a drug out there that works, that I need, and I can't get it right now. I have been sooooo frustrated... because this is potentially my life we are talking about. And it is a bunch of crap that they won't pay for it now, and that could kill me. So yesterday I called and said I will just put it on my credit card & pay for the drug myself, $5,500. And then the most wonderful thing happened! A nurse there (my angel!) took it into her hands, contacted insurance and did not take no for an answer, demanding an expedited review/request. She worked so hard on this, talking on the phone, filling out & faxing needed paperwork, etc. She declared it a medical emergency and insurance is now going to have an answer within 72 hrs.! And if they say no, she is going to do the same thing with the drug co.When I found this out I just started sobbing-very happy tears of joy and relief. I feel like for the past 4 years I have endured a ridiculous string of bad luck & complications. It was very, very overwhelming to feel like there was nothing I could do to get the treatment I need, and to know that this one situation could possibly change everything in a bad way- quite possibly be the catalyst to the beginning of the end. FINALLY... something good was happening! I felt like a mountain was literally, instantly lifted off of my shoulders! Thank you God!!!! Thank you God!!! So this morning I am one extremely happy girl! Lesson learned (again, lol)... "trust in the Lord with ALL of your heart" prov 3:5. I have to remember I am not alone in this, even when it feels like it... I know He is here, totally in control of every single thing :)
And then yesterday had a perfect ending to the day... I got to see my sweet, beautiful, little baby Wyatt on ultrasound! Oh my gosh, he is PRECIOUS!!! He is almost 2 pounds, and has the fattest cheeks, little puggy button nose, and big lips! I can't wait to kiss them!!!!! I cannot wait for that little guy to get here. He is so funny, every U/S he has his little legs crossed at the ankles and always has his arms over his head. It looks like he is just lying there chillin out. hahaha. But he isn't... he does flips all the time.We need a little ray of sunshine so bad! Levi is going to be the bestest little uncle! And Ty too, who is going to be home from college for the summer-YAY! I have a feeling he is going to be the light of our lives :) June can't get here fast enough! lol.